Autism Spectrum Disorder
So a little while back, I was pondering how much to publicly share about family, particularly my children. There was a reason for this.
Today we received confirmation from my son’s school that he meets their criteria for ASD — Autism Spectrum Disorder.
It’s not completely unexpected. My wife is a practicing counselor. I’ve got a degree in psych. Both of us had noticed certain behavioral issues.
Jackson[1. That’s the name he chose for himself for Daddy’s blog] is a brilliant little kid, and he’s very high functioning. He is who he is. A note from the school doesn’t change that. What it does is gives us a way to make sure he gets the help he needs in school.
Next steps are to meet with the school this afternoon, and to talk to someone about a medical diagnosis. (If he meets the school’s criteria, the odds are very good that he’ll meet the medical criteria as well, since the schools … well, since it costs them money to provide special ed. services, they’re motivated to minimize the false positives.)
I’m still processing this, and probably will be for a very long time.
I’m not asking for advice, and I’m not currently in a space where I’m interested in hearing it. If you decide to comment and tell me what I should do, there’s a very good chance your comment will be deleted.
He’s a good kid. I know he’s going to be okay. I know the rest of us will, too. But it’s hard right now.
I don’t know where I’m going with this, so I’m going to just share a picture.
(This was from two years back. Jackson was sick. It’s one of my favorite pictures.)
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GoGo
May 14, 2010 @ 11:35 am
Hugs. Big Big hugs. & holding you and your family in the light.
Jim C. Hines
May 14, 2010 @ 11:38 am
Thanks.
zollmaniac
May 14, 2010 @ 11:41 am
Love the picture. Its good to see that it takes them a while to get too big for that. Best wishes to you and your family!
Jim C. Hines
May 14, 2010 @ 11:42 am
Oh, yes. Especially when he’s not feeling well.
zollmaniac
May 14, 2010 @ 11:50 am
I dread the day my little one is too big for it. Luckily, its a long way off!
mattw
May 14, 2010 @ 12:17 pm
What a great picture.
We worried about our son when he was younger showing signs of ASD. We had him checked out and he got some in home therapy (occupational, speach, and I can’t remember what the other was called). After we’d had my son checked out and gotten a tentative ok, my parents decided to butt in and we stopped talking to them for a little while.
It’s a sensitive issue and I wish you all the best.
And again, great picture, reminds me of my own little guy who’s a big Thomas fan.
Brian Briggs
May 14, 2010 @ 12:23 pm
It’s always tough to get notes like that from school, even if you suspected it. Sounds like you’ve got a great kid, and like you said notes from school don’t change that. Best wishes.
Ann (bunnygirl)
May 14, 2010 @ 12:53 pm
Kudos for being willing to acknowledge the problem and seek help. My parents practiced the fine art of denial with my brother, and the results were sad and predictable. With the right kind of assistance your son will have a very bright future.
Holly Nester
May 14, 2010 @ 1:03 pm
I know how tough that diagnosis is to hear even when you already suspect it. Mid-Michigan Autism Association is a great resource. If you or Amy need anything you can always contact me too. I’m on Twitter (hnester), Facebook (Holly Runions Nester) and of course you have my email. I wish you good luck. He’s got great parents and I can tell you from experience that early intervention helps a lot.
Jim C. Hines
May 14, 2010 @ 1:07 pm
Thanks, Matt. These days he’s moved on from Thomas and is currently obsessed with Bakugan, Ben 10, and Transformers. (Which works for me, as it gives me an excuse to play with toys and watch cartoons 😉 )
Jim C. Hines
May 14, 2010 @ 1:07 pm
Thanks, Brian. We suspected, and we pushed for the evaluation. But yeah…
Jim C. Hines
May 14, 2010 @ 1:08 pm
Thanks, Ann. I trust that he’s going to be fine. It just means the road may be a little bumpier than expected.
(Of course, living in Michigan, I should be used to bumpy roads by now…)
Jim C. Hines
May 14, 2010 @ 1:09 pm
Thanks, Holly. I’ll check out the MMAA site this weekend.
Katie
May 14, 2010 @ 1:50 pm
Well, this might be one of those rare circumstances that duct tape cannot fix.
I’m keeping you and your family in my thoughts today. Your son is lucky to have such great parents.
Cheers,
Katie
Jim C. Hines
May 14, 2010 @ 3:53 pm
Thanks, Katie. I should have brought up duct tape therapy at his IEP 😛
Jeffe Kennedy
May 14, 2010 @ 6:15 pm
I love that you let your son choose his own alias for your blog. Every superhero should get to choose his own alter-ego. Best of luck in the coming days!
Anonymous
May 14, 2010 @ 11:34 pm
I am fortunate enough to work in an awesome school, at this point in my life. I’m not a teacher– I’m just a library assistant para– but the school where I work allows community members to teach, if they have something to offer. I have offered classes a number of times. The first was about two years ago. On the first day of classes a bright young man I’d seen around walked up to me and introduced himself, and then told me he was autistic. Shocked the hell out of me, truth be told. Of course I paid closer attention to him after that, and I could definitely see it… but he was fine. I’ve worked with a number of other ASD kids as well… bright kids, all. Environment does wonders.
I do hope that your son’s school is a positive environment for ASD kids; I have an ASD friend who had a less than positive experience. =/
Mostly, *hugs*
Jim C. Hines
May 15, 2010 @ 3:29 pm
I was surprised he didn’t pick something a little more superheroish. Or at least something like Optimus Jackson.
Laura J. Underwood
May 15, 2010 @ 4:19 pm
Take heart. Elizabeth Moon and Steven Piziks (aka Harper) have both gone through this. Elizabeth’s son is now grown and going to college (and she was told to put him in an institution when he was small). Steven has come up with clever ways to deal with the behaviors.
Good thoughts and good vibes coming your way.
Laura J. Underwood
KatG
May 15, 2010 @ 9:47 pm
We have three friends with autistic kids. There are challenges but there are good things too. Plus, he’s adorable. Hang in there.
Leah Dean
May 16, 2010 @ 8:45 pm
My son has aspergers and it is hard but he is a great kid and as an adult with it also there will be challenges but he will be just fine.
Cy
May 17, 2010 @ 2:03 pm
Aw! Sorry for coming late to the party (was out on Friday)… I’m very sorry to hear this, but I’ve gotta say, if there’s anyone who’d really do right by Jackson and give him the best life he can possibly have anyway, it’d be you, Jim. It’ll be tough on you and your wife, I’m sure, but I know for a fact that there’s more than enough love in your heart to take this on and see it through. Best wishes to you and your family.
Easter Seals and Autism » Blog Archive » A writer’s take on a new autism diagnosis
May 18, 2010 @ 2:38 pm
[…] his post last Friday: A while back, I was pondering how much to publicly share about family, particularly my children. […]
Mimi Stratton
May 19, 2010 @ 10:50 am
It’s hard to “make friends” with autism. My kid is 20, has autism, and is non-verbal. Some days, I’m still working on accepting his diagnosis! The early years, and just after diagnosis are tough. Know that it gets easier. Best of luck.
Just a mom.
May 19, 2010 @ 2:47 pm
Facebook does amazing things, sometimes. You and your wife will be your children’s best advocates. Take care of each other as much as you take of them.