Updates and Stuff
Cancer Stuff
We got back about a week ago from my wife’s latest round of chemo. She had an infusion reaction and a painful (but not life-threatening) side effect from one of the meds, but otherwise things went pretty well. The oncologist says the lymphoma is responding well to treatment.
In better news, it sounds like they’re going to transfer her care from the hospital in Detroit to a more local cancer center, which means no more 90-minute drives back and forth, and no more needing to stay in the hospital apartments for 1-2 weeks at a time. (At least until we get to the bone marrow transplant part of the process.)
People have asked what they could do, which is very kind and much appreciated. I don’t think there’s much we need at the moment, so my suggestion would be to look into donating blood. Amy needed a lot of blood products at the beginning, and will probably need additional transfusions, and it all drove home how important it is to have a well-supplied local blood bank.
Writing Stuff
On the writing front, I actually got a little work done on Terminal Peace earlier this week. Not much, but it was something. I’m hoping as the cancer stuff calms down a bit, I’ll be able to keep making progress there. But helping my wife to get well again and taking care of the kids is still the priority.
Thanks to everyone who boosted about Terminal Uprising coming out last week, and to those of you who’ve commented how much you enjoyed it and/or posted reviews. I haven’t been able to do as much promo this time, for obvious reasons, so I’m even more appreciative.
I’m still hit-or-miss on emails and such, but I’m trying to catch up and stay on top of things.
Depression Stuff
I’ve talked about my depression off and on. I’d expect, given everything that’s happened these past two months, that I’d be drowning in a nasty brain-weasel flare-up. Surprisingly, I haven’t seen too much sign of that yet.
Yet being the key word there. My response to crisis has always been to focus on helping the person in crisis and doing whatever I can do. I’ve been in that mode for two+ months now.
I suspect sooner or later it’s going to catch up and knock me on my ass. So I’m trying to watch my own symptoms, and to do what I can to take care of myself. Things like letting other people around town help out, or even asking for help when I need it. I also scheduled an appointment with my former therapist for next week, just to come in and talk and vent and see what happens. Then there’s stuff like sitting around and watching the second season of Dragon Prince with my son to relax and unwind a little.
I know I’m keeping some things stuffed down for now to help me function. But I don’t feel like I’m hiding from it. So far, this seems to be working.
Random Cancer-Related Observation
I’ve lost about ten pounds since this all started. This diet plan sucks!
James Kilbride
February 21, 2019 @ 12:23 pm
Jim, Good luck. Best wishes and enjoy Dragon Prince with the son. My three are enjoying it as well so best luck with that and with finding the time to take care of yourself. The same to you and your wife. In a world filled with news that feels depressing hearing that she seems to be responding well to the treatments is a bit of a highlight to hear something going well. Good luck.
Wendy Zdrodowski
February 21, 2019 @ 12:42 pm
I understand the “I’m busy now – I will have a nervous breakdown when I have time to do so”.
Best wishes to you and your wife. I have 3 friends who are happily (If occasionally grumpy with GvH) in remission for various cancers after bone marrow transplants.
I encourage everyone to get tested as a possible donor – you could save someone’s life
Heather Grove
February 21, 2019 @ 1:27 pm
Best of luck with your wife’s health *and* your own. You have my best wishes. I absolutely loved Terminal Uprising, and I currently have my mother reading (and greatly enjoying) the Libriomancer books. You’re a true gem, and we’ll all still be here when you’re finally able to take a step back.
Jennifer Dian
February 21, 2019 @ 3:34 pm
I’m glad you’re past the “coping with immediate and ceaseless disaster” phase. Best of luck staring down cancer and depression. Many, many people are rooting for your family.
Greg van Eekhout
February 21, 2019 @ 5:49 pm
Being able to stay at home sounds really, really good. Still thinking of all of you.
Claire
February 21, 2019 @ 8:34 pm
So glad your 90 minute commute/hospital apartment stays will be coming to an end for a while! That will help so much… Seconding all calls for self-care, even (especially?) in the midst of crisis.
In case they’ve gotten lost, I’ve recently e-mailed you a couple of cool and/or funny things, in the hopes that they’d bring a smile to your face. Don’t worry about replying – just making sure you know they’re there! (grapes! in the microwave!)
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Dana Lynne
February 22, 2019 @ 8:48 pm
Thank you so much for the update. Thinking of you all and congrats on the book launch!!!
KatG
February 23, 2019 @ 6:59 pm
Wishing your wife the best and your children hugs. Don’t forget sleeping. Very important.
a fond fan
February 24, 2019 @ 4:25 pm
While I definitely had the padding to lose when my mom was undergoing chemo, I really needed my energy levels, so I learned to keep Glucernas around. It’s got a relatively low glycemic index, protein, and is not so large as to be overwhelming to drink (or leave you with a sloshy stomach after). Hope that helps.
Fraser
February 26, 2019 @ 5:47 am
My weight does the opposite under this kind of stress, as it invites stress eating. which is rarely healthy eating with me.